We went to the school parent/teacher meeting last week. It was the first time to meet Ro’s teacher which he’s had for the past two years. So it was a big event and a personal achievement. Luckily we are well supported by the school. My spoken Irish doesn’t translate well on my eye-gaze computer! I have struggled with phonetic translation. So bread ‘aran’ becomes ‘awrawn’ and cheese ‘cais’ shapeshifts into ‘kawsh’! Yes the difficulties associated with an all Irish school when the main Irish speaker in household cant speak! But, as I said, the principal and teachers are hugely supportive, offering help whenever they can so we are both grateful and relieved by that.
Kitty is five today! We had a party at home last year but we chose the stress free option this time. ‘Chuckies’ is an activity centre in Cork, hell for some but wonderland for kids! I will give it a go but will line up an escape car if it all gets too much!
I’ve said before that the ‘secrecretions’ (official word for ‘dribbles’) is one of the most challenging symptoms of this condition. Especially when I am completely dependent on others to mop it up. Recently, sitting outside, a little pal of my kids sat herself down near me. I started dribbling and felt so awful and helpless. That image of myself so desperate and helpless overwhelmed me and the little girl turned away as I began to cry. Poor little thing. Might have done the same when I was her age. Very aware of how I must appear in public “a dribbling non-talking unfortunate somebody”. This image of myself motivates me to write as I want to say ‘but I’m ok on the inside, my spirit is working so well ‘! This brings to mind the prayer I hear through the baby monitor some nights. ‘help mummy to be strong on the inside ‘. The kids refer to me as being ‘weak’. We haven’t called it by its true name and I am happy with that.
To finish something Ro said one time which I love: ‘Mummy is the strongest weak person I know ‘!
Here’s a song I love: