I have been feeling low this week but have only understood why this is
in hind sight. A lot of equipment has arrived recently and it
represents change and deterioration as far as I’m concerned. A hoist
that looks like a crane (Willie O’Brien Cranes -“if you can’t lift it we will shift it” … eat your heart out!) is used
now to lift me from my cosy bed every morning. We actually have a
laugh with my fabulous carers. If I didn’t I’d be in tears!
Secondly, a new wheelchair arrived from the IMNDA (Irish Motor Neuron
Association) which is black and awful looking. I wonder why the
necessary equipment often looks so drab. Why can’t the chair be bright red or cerise pink I ask myself. However, it is the most
comfortable chair in the house now with the added bonus that I can be
pushed around our home with minimum difficulty to join in on family
activity whenever I want. Prior to this, I was stuck in a corner where
movement wasn’t easy.
The IMNDA have been such a huge support from day one. Though its hard
to say for obvious reasons, I’m really grateful for their continued
So the new hoist and wheelchair came this week and moved me from my comfort zone. But I accept them now as things invoking more freedom. Especially the chair.
I was thinking about the ‘lowness’ of last week again and yes it’s the
time of year when mothers especially get thrown into the rollercoaster
of Christmas. It’s such a busy time.
As for that cloud it will pass. It always does.
Kitty said something fabulous this morning while attaching, in an
official manor, a sticker full of kisses and hugs to my jumper, “Mummy, you
have to hug and kiss all the time because you are the Captain of
I am eternally grateful to my body for giving me two wonderful
children who are full of such joy and inspiration every day!
Then she wrote it down for me: